{"id":4389,"date":"2020-02-12T22:31:44","date_gmt":"2020-02-12T22:31:44","guid":{"rendered":"https:\/\/premioluisvaltuena.org\/finalistas\/%edicion%\/fuerza-de-vida-lo-que-salva-el-amor\/"},"modified":"2020-02-16T23:53:24","modified_gmt":"2020-02-16T23:53:24","slug":"strength-of-living-what-love-saves","status":"publish","type":"finalistas","link":"https:\/\/premioluisvaltuena.org\/en\/finalistas\/2017\/constanza-portnoy\/strength-of-living-what-love-saves\/","title":{"rendered":"Strength of Living, What Love Saves"},"content":{"rendered":"\n

Jorge is 37 years old and was born with a congenital malformation caused by a medicine with thalidomide, prescribed to his mother, without any form of pharmacovigilance protocol, one year before he was born. He also has pterygium in both eyes which is spreading on the cornea and could mean a complete loss of sight; a pathological condition of the eye which is worsening through the lack of specialist treatments. <\/p>\n\n\n\n

Yet he never gives up and has been able to get on with his life. He is currently finishing secondary education in a community school and eight years ago he met and started a family with Ver\u00f3nica.<\/p>\n\n\n\n

She was born with a myelomeningocele and has undergone surgery on a number of occasions to straighten her spine. She has also had a cerebral shunt inserted to reduce intracranial pressure. Therefore, she needs regular health checks and rehabilitation treatments, but the Public Healthcare System continues to erect bureaucratic barriers.<\/p>\n\n\n\n

Jorge and Vero are two people who dare to dream, beyond the diagnosis label. They want to see their young daughter \u00c1ngeles grow up and have a decent life with equal opportunities. Sadly, they are invisible to social services. Through my documentary work, I aim to grant visibility to the reality of neglect in Argentine institutions that people with disabilities and scant financial resources face. I also want to highlight the legal void for those people affected by thalidomide, as well as emphasising the lifeaffirming and healing effect the bonds of love can bring.<\/p>\n\n\n\n

My aim is to flout the disapproving ideas and looks that come from many so-called \u2018normal\u2019 sectors in society regarding the possibilities of a person with disabilities living a full life in every way. I want to cast light upon the simplicity and authenticity of human relationships, those which are elemental in our society and are rooted in equal rights.<\/p>\n","protected":false},"excerpt":{"rendered":"

Jorge is 37 years old and was born with a congenital malformation caused by a medicine with thalidomide, prescribed to his mother, without any form of pharmacovigilance protocol, one year before he was born. 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